Sunday, June 6, 2010

Welcome to the Lyme Life

Just in case you're new to my journey, my name is Jennifer and this is my blog. I have been actively fighting this world of Lyme Disease and co-infections since March of 2007. I've also dabbled in mineral deficiency, Progesterone Deficiencies, Heavy Metal Toxicity and other health issues. I had a PICC inserted into my right arm July of 2008 and I battled with it every day to keep it in for almost 7 months. There were several moments where it probably should have been pulled, but between my wonderful nurses, doctor, picc line insertion team and husband ... we managed to keep it in as long as I needed it. We used it up to the night before it was finally pulled.

I've used regular antibiotics, supplemental therapies, IV vitamin & minerals, yeast battling medications and chelation treatment. I know there is more that I have used, but the most important part of my protocol was keeping the Candida (yeast) at bay. I feel as if the IV vitamin & minerals did the best at keeping my energy levels up. I had an extremely experimental IV which I used for well over 7 months (probably more like 9 months) which isn't available any more. I feel like that IV did more for more than anything else I have tried.

Now while that stuff pretty much rules my life, I am a person. I live my life the best I can with the skills that I have and the love I receive. My husband and I have been coupled together now for 12 years. This past April, we celebrated our 10 year wedding anniversary. He has been with me on almost every single doctor visit I have endured. He's only missed ONE hospital visit and that one was just a quick check on my picc line when I was having an allergic reaction to the cleaning solution. I wasn't even there that long. He's supported me with his quirky sense of humor and determination to get to the root of my health issues. Google was his best friend when I spiraled out of control in 2006/2007. He is the one that found my Lyme Doctor, he is the one that diagnosed me, and he is the one that ensured that I filled out the paperwork to get to see the Great Oz of Lyme.

Here are my most relevant posts to my health. Start at the top and work your way down for the Chronological Lyme Journey.

My Diagnosis
My Therapy
A day in the life of a treatment
My PICC Line Story Part 1
My PICC Line Story Part 2
Live Blood Cell first visit
Grey's PICC Line Story
Slow Progress
My LLMD appt
November 15, 2008 Update
Chelation Challenge
Mercury Toxicity (My Mercury test came back negative)
Living the Lyme Life Post
Aluminum Toxicity
PICC Line Removal
Two weeks post PICC
Two year anniversary plus supplements
March 15, 2009 Update
Post PICC Pics
Conflicted Lymie
CDC Positive Test Results
Ups and down of Lyme
Live Blood Cell of Rob & Me
Previous Photos of me
Small Victories
Curious Lymies Goes to the Doc
OCD about ticks
The Serenity Prayer
August 8, 2009 Update
Supplement Strategy
August 30, 2009 Update (Rob & Jennifer)
Starting LDN
Explaining LDN
October 10, 2009 Update
January 9, 2010 Update
Third Anniversary of Diagnosis
March 18, 2010 Gotta Go
March 25, 2010 Rough Week
May 2, 2010 Swollen Eyes
May 7, 2010 Weird Bruise on Hand
May 22, 2010 Waiting
May 22, 2010 It dropped
New Dose LDN
June 5, 2010 Update

There ya go. The most important health blogs all in one place! Enjoy reading if you've not read them before.


LymeFighter11 said...

Hey Jennifer

Yes we see how controversial the disease is. We are actually going to be heading to Orlando once schools out to see a Lyme specialist down there. The doctor I have now just seems uneasy about treating me. Do you have doctor locally that you recommend?

My mom is looking into that Under Your Skin thing coming up, she said that she's heard of it. Thanks for letting me know about that!

I'm sorry to hear what you're going through! Lyme Disease is not fun! You live in Raleigh right? Maybe we could meet some time.

Anonymous said...

I live in the Raleigh area too. Did you read the article about Bartonella that was in the News and Observer? You should check it out.

Jennifer said...

Anonymous. I haven't seen it. I don't read the newspaper perse, but I'll check it out online if I can find it.

Alexis, I'll comment on your page.

LymeFighter11 said...

I didn't read the newspaper article either, but I'm going to check online also.

Hope you are feeling good today!!

LymeFighter11 said...


I'm not exactly sure what the doctor in orlando's name is, but he was highly reccomended by a special friend of ours who also has Lyme.

I don't think I can come to the screening tomorrow because I have EOG testing at school that I missed due to being sick. But I really would like to come. Thanks for letting me know about that.

My mom will email you though, she said that she definitely would.

We live near Raliegh also, maybe we could meet in person sometime. I will have my mom email you soon. I hope you are doing well.