Tuesday, May 12, 2015

NC Lyme Advocacy Financial Support

NC Lyme Advocacy needs your support. Recently, we just renewed 4 domains and will need to do that again next year, but we need your support now.  Any support we can get will help tremendously.  Below is an easy to use shopping cart with different options.  Once we receive the funds needed for the domains, we will change this to indicate where else we need your help.  We appreciate your willingness to help us continue to help you.  Please visit our websites:

And these are our costs for 2015
www.nclymeadvocacy.com - cost about $15.17 to run for one year
www.nclymeadvocacy.info - cost about $13.17 to run for one year (covered by bracelet sale)
www.nclymeadvocacy.net - costs about 17.17 to run for one year
www.nclymeadvocacy.org - cost about $18.17 to run for one year
4 new ink cartridges - $55 to $65 each - Our color cartridges are completely empty. 

Here is a way to help by simply donating.

Please help us with these things.

If you'd like, you can also order some bracelets.


Friday, September 26, 2014

Today is Mesotheilioma Day. What's Mesotheiloma you ask?  Find out from my friend Heather at her blog.

Wednesday, February 12, 2014

New Blog & New Bracelet Design

HI everyone!  Remember to go check out the new blog at http:livinglymelife.wordpress.com 
There have been several new posts since I opened it up including information about my newest treatment & reactions. 

However I haven't figured out how to add a paypal button to wordpress quite yet so I updated my paypal button for my We Fight Lyme Together bracelet sales on the right and wanted to post something here as well.  As soon as I find the card reader, I will post new pictures - However, I ordered a "new design" for the bracelets.  So I now have two design options and two size options.  The original design is Lime Green & White swirled.  The new design has Lime Green/White/Blue segmented.  There are many "variations" in the new order so each one is unique.  Some of the designs start the We on the white portion, while others start on the green or blue portion.  I will randomly pull bracelets for orders for the Tri-Color option. 

You may want to know what I use the proceeds for.  I use the proceeds for a variety of different things. 

  • proceeds help pay for my new treatment protocol.  
  • proceeds help raise awareness for Lyme in North Carolina
  • sometimes proceeds help pay for the original cost of the bracelets.
  • sometimes proceeds help pay for shipping if it exceeds what I've requested.


Monday, December 16, 2013

New posts at LTLL Wordpress

Since sharing that I began a new blog, I've written a few new posts.  Come check it out!


I have yet to work on getting some old posts from this blog over there, but I will.

On the new blog, I discuss my most recent follow up, discuss the difficulties of daily living of having a picc line and also how I was trying my best to be patient.

Please come join me over there as I will try to update more frequently, especially during the journey of the 2nd PICC line.

Tuesday, December 10, 2013

The Time To Ask For Help

A lot has happened over the last day.   I have been in and out of treatment for over 6 and 1/2 years.  I am hopeful that insurance will cover at least a small portion of my upcoming treatment, but I also understand the realities that many Lyme patients get denied coverage for IV antibiotics.  In order to fight, I need help.  I never dreamed that I would ever ask for outside help, but the time has come. 

Any contributions to my paypal account would be greatly appreciated.  Below is an easy to make contribution button for my treatments.  I want to send something back for your help so for those that donate $25.00 - they will receive 5 We Fight Lyme Together Bracelets.  For those that donate $50.00 - you will receive 10 We Fight Lyme Together Bracelets.  For those that donate $100.00 - you will receive 20 We Fight Lyme Together Bracelets.  This will continue while supplies last.

If you want to contribute an amount that isn't listed below, you can send it directly to the paypal account -

Thank you so much.  Even the smallest amount will help.

Thank you for helping me pay for treatments
We Fight Lyme Together Bracelet Sizes

Monday, December 9, 2013

New Blog Website

I have been thinking that since I am on wordpress for NC Lyme Advocacy more often than I am on blogger, that it might be better for me to open up Living the Lyme Life on Wordpress.  So I have.  I will be putting some of my older posts from here on the new website over the next few weeks, but for now I have a welcome post and information from when I got my first PICC Line in 2008.  Please feel free to visit and I hope to be posting on a more regular basis.  For a while, I may post in both places.  However eventually I suspect that I will taper off blogger and use only wordpress.


Yes, I'm alive!

I'd like to say I have no excuse for not blogging, but truth is I have a few reasons that I've not blogged. 

The first one is the absolute worst thing that can happen - I forgot my log in and my password - and my email address for the blog.  I couldn't log in.  I woke up at 3am - and REMEMBERED - and because I had a Lyme moment before I went to bed and didn't put the heater on a timer, I woke up to an almost 80 degree room.  Sweltering hot.  So I got up - piddled on the computer and just now decided to try to see if I actually did remember the log in and password.  Maybe I need to write that sucker down!   The next reason I've been quiet is that I've just not felt like sharing. 

Let's go back to that heater - I stay chronically cold.  However, it is not economically affordable to keep the house at a temperature that would keep me nice and toasty.  So during the day, I pretty much stay covered up with a blanket.  If I get too cold, I turn on the fire place and it helps slightly.  However at night, I freeze.  I do have an electric blanket and it works well, but if I scooch it around and it isn't on me directly, I shiver until it wakes me up.  So last winter, we got the bright idea to get a small heater for the bedroom.   It has a timer - and a thermostat.  So what I do - is turn it on for 75 degrees and set it to run for 2 hours. 

If I do this right as I get into bed, the room is cool enough for me to get to sleep and the room warms up so I'm cozy the first couple of hours.  If I get to sleep quickly, I sleep well through the night. And then the heater turns off - and the house heater continues to run when the rest of the house is cooler than 68.  So in the winter when I wake up, it is likely still 70 to 72 in the bedroom when I wake. It works well for me.  However, last night.  I failed to turn it on for 2 hours.  So - from 8 until 3 - the heater ran.  Also, the house heat ran.  So when I woke at 3am sweating and uncomfortable and feeling like I was going to pass out - I saw the temperature was at a balmy 78.3 degrees. I knew I wouldn't be getting back to sleep so I just got up til my body could feel a little cooler.  Now my toes are  freezing. I'll probably try to go back to bed, but doubt I'll get much sleep. 

Sleep:  Many Lyme patients have trouble sleeping.   I tend to not have this problem.  My problems is that I sleep too much.  However about one night a month, I'll have trouble either falling asleep - or - staying asleep. There is no rhyme or reason for that night in the month.  Tonight, there was a reason.  The heat.  Maybe it will still count for my once in December sleepless night.  Now the thing is I still got almost 7 straight hours of sleep - even WITH waking up at 3am.  However, I typically sleep at least 10 hours, sometimes if the dogs cooperate I sleep 12 or more. 

Well I hope to share more soon.  I've had so much go on since my last post, but I likely won't be back-sharing. 

Tuesday, October 1, 2013

Vector Borne Infection Night

NC Lyme Advocacy Presents Vector Borne Infection Awareness Night Featuring Award Winning Documentary: Under Our Skin on Tuesday, October 8, 2013 at the Johnston County Agricultural Center* (please see note at bottom regarding location)

Please EARLY RSVP by Friday October 4th in order to help us prepare for the event.  Registration gives us an idea of how many to plan for, but no one will be turned away at the door for lack of RSVP.


Although there may be a small registration table outside the auditorium prior to 5:30, the doors for the auditorium will open for the public at 5:30.

Preliminary Itinerary:

5:30 to 6:00 – Registration – This will be the time you can check in at the registration table, go look at the brochure & display tables, check out the snack booth (for those that RSVP and others on a first come first serve basis) and find your seat for the presentation

6:00 to 6:15 – Introduction & Welcome Message by NCLA co-founder

6:15 to 7:00 -An educational presentation will begin promptly at 6PM by Dr. Mike Waldvogel.  Dr. Waldvogel serves as the Extension Specialist and Extension Associate Professor at NC State  University in the Entomology Department.  He also serves as Director of Structural Pest Management Training & Research Facility.  The presentation will be 45 minutes long about ticks and mosquitoes.  Dr. Waldvogel will cover their life cycles, habitats where they live and how to prevent bites.

7:00 to 7:15 – Quick Break for everyone to stretch their legs a bit, run to the restroom, grab a quick water and for everyone to have a chance to look at the display again.

7:15 to 9:00 – Documentary of Under Our Skin will be shown.

9:00 to 9:15 – Quick Question & Answer

9:15 to 9:30 – Conclusion.

*note about address*

The Address is 2736 NC Highway 210, Smithfield, NC 27577*  Note from Amie. The map that is used by Google does not have our office listed in the right location.  If you use Mapquest or a GPS then they will take you to our office if you put in 2736 NC Highway 210, Smithfield, NC 27577.

If however you use Google maps or a GPS which runs off their system then you have to put in the address for 2640 NC Highway 210, Smithfield, NC 27577.  They don’t know why this happens and they’ve tried to fix it, but that should take you tot he right spot if your GPS uses google maps.

We would like to take the time to thank the following groups, companies or organizations for helping us with our Vector Borne Awareness Night.  Without the following, this event wouldn’t be happening
  • Johnston County Agricultural Center (Special thanks to Amie!)
  • NCSU (Special Thanks to Dr. Waldvogel for his presentation)
  • Lyme Disease Association (providing brochures, tick cards and bookmarks)
  • CDC (providing bookmarks, a few signs and some information on West Nile virus)
  • IgeneX – generously donating some tick tools for our first 30 registered guests and providing brochures
  • Damminix – generously providing a box of Tick Tubes to show at the event.