Sunday, November 30, 2008
Last of November
This November has been one of the best Novembers I have had in three or four years. I pretty much found a lot of my former best friends in life. Found one of my best buds from high school and even more impressive (and skillful if you ask me) I found sisters of my very best friend from Elementary School. I have yet to talk to my best friend, but it's a step in the right direction. Then last night as I was looking up something, a name popped up on the facebook. I wasn't sure if I knew the fellow or not, but he sure looked familiar and his last name was that of my closest friend from back in the day.
So I pulled up his profile, took a look through his pictures (yes I am an internet facebook picture stalker) where one of them confirmed that he was the younger brother of my friend. Contacted him immediately and amazingly enough he remembered both me and my brother. I hope to hear from him soon about his brother. In July of 07, I did a blog on friends. I listed my friends from that time in my life. His brother was one that truly impacted me. Heck, how could he not? He gave me bubblegum rings (I bet I still have them too) and hugged my neck a lot.
Amazing how the past has a way of impacting the future. I wonder how the friends of my past sculpted the person I am today. I wonder if they realize the "rock effect" they had in the river of my life. Last year my new year's resolution was to smile more and make someone else smile. I had to smile at least once a day and make someone else smile at least once a day. That meant if I didn't leave the house, I either had to hear someone smile on the phone OR make my husband smile. If you guys know my husband, this is one difficult task. :)
I don't take resolutions lightly. I did this every day. Bonus points were awarded for laughs and double bonus points for laughter with snorts. :) So what is it that I want to "resolve" this year? I know 2008 still has another 31 days (32 counting today), but I need to start now in order to accomplish my task. It will be a doozy. I want to spend time with my friends. I want PHOTOS of my friends. I want to find photos of the past (if they are available) and photos of the present and put them in one album (heck this might take two or three) called Friends. I want to be able to look at these photos whenever I am feeling down and smile knowing that these are the people that rock effected my world. Whether I knew you one day, two days, or 10 years (or 32) ... I *want* the people that shaped, molded, and helped me become the woman I am today in this book.
Don't be shy friends. :) If you have pictures of you and me together in the past 32 years, get them to me. I *want* them. It's more than a want. It's a need. :)
Friday, November 28, 2008
Thanksgiving 07/08
This year we got up fairly early and I spent most of the day at my family's house. I did not even take a cat nap in the car. :D This morning we got up and Rob pulled down the tree. Well I didn't remember because Christmas 06 I was so sick and did not even know what I had yet, but apparently Rob had bought us a new Christmas Tree. We got it up. Rob helped put the lights on and the red/green garland on and left me to my own devices.
I have just spent the last hour looking at ornaments from years past. I love doing this. We have to get a new Christmas topper. I don't think the star we usually use will work on this tree. I think I appreciate the ornaments and tree more this year than ever in years past because I couldn't do this last year.
You see when I was little, we spent every Christmas with my Grandparents. I can't imagine a Christmas without them. Every Christmas, my Granny would decorate her tree with what had to have been at least 2,000 lights and tons of ornaments. I don't think there was a bare branch on that tree. Every year I would ooo and aaa over her tree. There was one that I just loved, a ballerina. I would take her off and carefully spin her around in my hands. It was my sign that Christmas was around the corner when I was able to touch this ballerina. Today at the age of 32, I still pull that ballerina out and twirl her in my hands. I can feel the love of my Granny in that ornament knowing that every year for what must have been 20 years she took special care to make sure that special ornament was on her tree for me.
Now there are other ornaments that hold special memories for me, but not a single one holds a candle to that ballerina.
Thursday, November 27, 2008
Happy Thanksgiving
God, Family, Friends, Health, Pets, Home, Gas (of the car variety and the heater variety - not the out of bottom variety .. :) ), Carolina Basketball, Work, Voting, Water, Food, finding old friends, enjoying time with people, and so much more.
On the Health Front, I am thankful that I can run up the stairs. Last year this time, I could barely walk up them. I have this thing where I "count the stairs" every day when I go down them so that I don't fall. I realized yesterday morning when I go to the bottom (all whopping number 4) that I failed to count and I didn't fall. I am thankful for that. :)
I am thankful that I can eat cheese whenever I want. Silly I know, but last year this time I could only have things dairy related 2 hours away from my medication. I *love* cheese. I think my children's name will be Mac and Colby. How many of you are laughing? How many of you are scratching your heads because you don't get it yet?
I am thankful that I can go about two weeks going to bed late without me needing to catch up on sleep. And by "late," I mean past 8pm. Last night I had to catch up with 11 1/2 hours of sleep, but I should be good to go for another two weeks of nights where I can stay up until 9pm.
I am thankful that my wonderful husband did all this research so that we could find the doctor I am seeing. He has been a gift from God. Surely by now I would have perished had we not found him. I am reminded of this line from July "I have GOD, I have HOPE .. I have FAITH .. I have FAMILY and I have FRIENDS. What more can I ask for? Just one more thing... I want to say .. I have HEALTH."
Now my Health isn't what other people would call health. I catch a cold just by looking at a picture of a germ, but if a cold is the biggest of my worries ... that's a blessing. I meant to get a little mask for my mouth/nose for today's thanksgiving festivities. I forgot. Oh well who wants to look at me with a mask on anyways. I'll be sick within a week, but who cares. I will do my Vitamin C and Glutathione and the rest of my minerals and vitamins and I'll be good to go after about 3 weeks of coughing and hacking.
Besides What is Christmas without a cold? I don't think I have ever truly been well on Christmas. So what's one more? :) Have a blessed Thanksgiving. Remember even if you can't get out of the bed on this wonderful day, you still have a lot to be thankful for ... Because if you can read this post ... you are alive. That is a glory in and of itself. :) (and if you can eat ham/turkey and other thanksgiving foods ... you should be VERY thankful. YUMMMMMMMY).
Wednesday, November 26, 2008
15 months ago
I wrote this blog on myspace on August 26, 2007. It was approximately 5 months after beginning treatment for Lyme Disease. I will bold some very important lines.
Sunday, August 26, 2007
| Health Update As some of you may or may not know, I started having some health problems two or more years ago. {would be now over 3 or more years} I have never been extremely healthy having some odd things come up over my life (sinus problems, breast lump scare, gallbadder surgery, seizure activity), but nothing could prepare me for the worst scare of my life. I had something that no one could or would diagnose. I jumped from doctor to doctor having many tests and many wrong diagnosis. MS, Lupus, Rheumatoid Arthritis, and it's all in your head was just a few of them. It was time to take matters into our own hands and we saw a doctor who specialized in very weird things. He diagnosed people who couldn't get diagnosis. If we couldn't get answers from him, I knew that they would find out the answer after an autopsy. I felt close to death and I hid it from most of the people I loved. I couldn't hide the pain or the twitches or the multitude of other problems, but I could hide that I felt I would be better off dead because at least they would give my husband some answers to what has been wrong.
It's a very carefully planned regiment. Take vitamins two hours away from antibiotics. Take Antibiotics two hours from going to bed. Thank God my brain is almost back to normal or I'd have to have a spreadsheet like I did in the beginning checking off every thing I took. Hey you guys know I'm back to feeling better ... I've started writing my "novels" and run on sentences again. AND (this is for Mellissa A.) I've stopped running into walls. I guess I sometimes still do that, but I've not been tripping over the thin air. |
My memories
Monday, November 24, 2008
Your memories
So in the comment section of this blog ... please type up your favorite Thanksgiving/Christmas memory. :) Let's make this blog interactive now ladies. (and gentlemen if you're reading).
Sunday, November 23, 2008
I am wealthy
So I've been thinking about the term "wealthy" lately. It's not that odd that I would be thinking about "wealth" or "lack there of" during the Thanksgiving Holiday. It is generally the time when people are thinking about purchasing gifts for loved ones for Christmas. It is hopefully the time in which we think about the "wealth" of gifts the wise men brought for baby Jesus.
Commonly when people think of wealth, the things that come to mind are money, valuable belongings and property. People probably think of how wealthy others are to determine how wealthy they think they are. If they live in an area where everyone drives BMW's, then they probably don't feel very wealthy if they drive a Chevy Nova. If they live in an area where everyone drives a Chevy Nova, they would in all likelihood feel quite well to do if they drove a BMW.
Now let's "remove" the money aspect of wealth.
Wealth in general means an abundance of something. So if someone were to look into my cabinets, they might find a wealth of plastic cups or a wealth of needles for syringes or even a wealth of vitamins. Still those are "things" that a monetary assignment can be placed. It *cost* me to get those things. If someone were to look into my heart ... they would find a wealth of something that a monetary value can not be given. They would find an abundance of compassion, of laughter, of happiness, of friends, of memories and so much more.
So am I a wealthy person? Do I have the latest and greatest of things in my home? Compared to some that live in the area ... No I do not. Compared to others ... Yes I do. But am I wealthy? Do I have an abundance of things in my heart in which a price can not be determined? Yes I do. Can people (IE the bank) take these things from me? No they can't. I have a wealth of beautiful memories that no one can take. I have a wealth of friends, laughter, happiness, compassion and knowledge. So today ... I thank God that I am wealthy. My prayer is that all of you can be wealthy too.
Provers 19:8 (NIV)
He who gets wisdom loves his own soul; he who cherishes understanding prospers.
Saturday, November 22, 2008
Chelation Challenge
Then I will have to pee in a huge jug for the next 6 hours. Essentially what the medication does is bind to heavy metals. Then when I go to the bathroom, it will go out with my urine. Then I will shake this huge jug and pour a little bit out in a specimen cup for sending out for testing. Upon receiving the results to this test will determine my treatment plan from there.
I can't have this chelation challenge until I increase my minerals. This drug will bind to minerals as well so I will need to increase my minerals before so that I won't be deficient after the challenge. I will also likely have to have an IV of minerals a week or two before the challenge though I wasn't quite clear with that information.
Friday, November 21, 2008
Mercury Toxicity
Mercury Poisoning causes problems in the
Central Nervous System -- which includes anxiousness, loss of memory, lethargy, tremors, numbness of hands & feet --- and other symptoms too
Head Neck and Oral Cavity Disorders -- bleeding gums, excess saliva, bad breath, metallic taste, sores in the mouth, ringing in ears, and other symptoms
Gastrointestinal Problems -- food sensitivities, cramps, other GI complaints, diahrea and/or constipation and other symptoms
Cardiovascular Disorders -- abnormal heart rhythm, EKG findings, elevated tiglycerides, elevated cholestoral, abnormal blood pressures, all unexplained.
Immunlogic --repeated infections, viral, fungal, mycobacteria, candida and other yeast infections, cancer, autoimmune disorders, arthritis, Lupus, MS, ALS, hypothroidism, and other problems.
Systemic Effects -- chronic headaches, allergies, dermatitis, thyroid problems, subnormal body tempeture, cold and clammy skin, excess sweating, sensory symptoms including pain, numbness, anemia, kidney disease, adrenal disease, fatigue, loss of appetite with or without weight loss, and others.
I decided to bold all the issues I've had trouble with that may or may not be Lyme Disease related. The problems that I still have currently are italicized.
Thursday, November 20, 2008
Rebecca Wells
Wednesday, November 19, 2008
Amy Tan
Amy Tan also was in Under Our Skin and talked about Lyme Disease at the Tribecca Film Festival where Under Our Skin was first shown. They refer to her here as "former Lyme patient." So I am assuming she is doing well at this time. However like others who "do well" ... a relapse could always happen.
Tuesday, November 18, 2008
Hall & Oates
Here is his interview with Inside Edition on Lyme Disease.
Here are some Youtube videos of my favorite Hall & Oates songs.
Maneater
Kiss on my List
Rich Girl
Out of Touch
You've Lost that Loving Feeling
(though it was originally done in 1965 by the Righteous Brothers)
Hopefully Daryl Hall is feeling much better now.
Monday, November 17, 2008
Organ Donation
Have you ever thought about life after death?
There are two ways to live after you have died.
One is in the memory of those that you have left behind (and also through Eternal Life in Heaven, but this isn't that discussion).
The other is through donating your organs to those that need them.
I mean think about it ... you are no longer needing those organs and tissues. Your heart is no longer going to beat in your chest, your lungs will no longer breathe for you, your eyes will no longer see for you and your skin can no longer protect your body. There are many reasons in which people can not donate their organs, but if you don't have one of those reasons ....
Live after death. Give someone else the chance at life. Let your heart beat in their chest, let your lungs breathe in their body, let your corneas allow someone to see, and let your skin help a burn victim.
Here are some stories: One is the story of Jason Ray. Jason was adament that he wanted his organs donated. His parents honored his wish when he was struck by a car and killed. He went on to help over 75 people just by donating his organs and tissues. Jason Ray was bigger than life in his life as Rameses. Jason Ray is bigger than life in his death in the hearts of those that received his organs and tissues.
The next is the story of Tricia. Amazing woman with an amazing family. She has Cystic Fibrosis and after giving birth to a beautiful baby ... she was granted a life dream. She was on the receiving end of a double lung transplant. The link I gave is her husband's blog as he shares their life together as a family and the struggles they face along with the glory they give to God.
Another Cystic Fibrosis story is that of Alice. Alice received her double lung transplant over 9 months ago. She is doing well and even participated in the Transplant Games. She thinks of her donor every day.
Here is a story of a woman who is WAITING. She is waiting for the chance to breathe. She is waiting for a match of someone who is willing to give her life. Bree just wants to breathe and live her life without Oxygen and antibiotics. She just wants a chance to live again.
Please consider life after death. There are people waiting. Consider being an Organ Donor.
Sunday, November 16, 2008
My LLMD appt
Those memories were from the Outer Banks and Western Carolina
Carolina and a work related event
I was armed with the fun I have had rather than problems. I was armed with the knowledge that the goal in this "whole treatment" is to reduce the symptoms in between treatments and to spread the treatments further and further apart.
I was also armed with the knowlege of my Live Cell Analysis (finding Parasites, Plaque, Black Fungus, Lyme, Yeast and Heavy Metal Toxicity) and that my CBC and other numbers had improved since my last test. So I went in hopeful. I was hopeful for a light. I wanted that light at the end of the tunnel. I needed that light at the end of the tunnel. AND that light needed to NOT be a train.
So whenever I leave my office I generally get some sense of hope, but never is an end in sight. Today for the first time our focus is going OFF of Lyme Disease and we are focusing on Parasites and Heavy Metals. Now I am still going to be having my Lyme Treatments, but those are going to be spread further apart. My next appointment isn't until 6 weeks after my last treatment and I am going OFF of my oral Dioxychlor. WOOOT WOOOT.
So I have to increase my "mineral" intake so that they can test me for Heavy Metals. Some of my symptoms have pointed that way, but we've been so focused on Lyme and co-infections that we have not even "gone there." It's a marathon ... not a race. I have to go slow and steady. After all, the turtle wins the "race." So I'll have to do the jug-o-pee test. I know this has you intrigued.
I'll get an IV of these meds and for 6 hours after the start of the meds I have to PEE in a JUG. Then I have to shake this jug up .. pour a little bit out and send it off to be tested for all sorts of heavy metals. It will take the words "Pee You" to a whole new level. :)
So that's it. My doctor is pleased with my Lyme Progress. I still need the PICC since it is doing well and ... I'm so psyched. :)
Saturday, November 15, 2008
How am I doing?
I have been thinking about the comparison of last year and this year. Last November, I went to Western for Alumni Band. It hurt to walk, it hurt to breathe, it hurt to sit, and I was pretty miserable. I had 15 baggies of medications that I had to take with me. Five baggies for each day for the 3 days I was there. Each baggie contained no less than 5 things in it. It was the easiest way to keep control of what I had to take for my short trip.
This November, I went to Western. I took a container of alcohol, two heparin shots for my PICC line and a bottle of Dioxychlor. I had to take nothing with me to the game. I only had to do the heparin shots at night in the comfort of my hotel room instead of in the bathrooms at the WCU football stadiums.
Last year I went to Late Night with Roy & a basketball game. I hurt .... every bone in my body ached. It hurt to walk the short distance from the parking deck to the Dean Dome. It was hard to enjoy the most exciting time on UNC campus because my head hurt so badly.
This year I went to UNC basketball game and toured the campus. I sat down rarely and was able to keep up with my fast walking husband. My lungs gave out faster than my legs did. My bones never hurt even once and the only sign that I even had a problem was shortly after I ate. I had a severe case of heartburn ... or maybe it was just gas. :) In either case, it didn't last too awful long.
I was able to HUG ... It has been so long since someone has HUGGED me without fear of hurting me. I don't even think my friend realized that he should even be careful. I haven't even tried to REALLY hug anyone in so long that I just had to keep hugging over and over again because it felt so darn good. It most definately did not hurt. Well ... until he squeezed me so hard that I about lost my breath .. but I weigh 95 pounds and he weighs .. more than that. :)
The different between this year and last year is drastic. I can walk, breathe (sans huge massive constrictor type hug), hear the roars of the Dean Dome without headaches, and have a wonderful time without worry about medications.
The last few months I have had very few worries. I've had a cold. Big whoopty do. :) It has lasted over 3 weeks, BUT .... I don't have a headache, my joints don't hurt, i'm not dizzy, I can stand up right, I don't get lost going home or to work, and the list could go on and on.
I believe I still have a long road to recovery, but I am on my way. My goal earlier this year was to be well at Thanksgiving. Do I think that Lyme & Yeast won't be an issue then? No, but the symptoms have been drastically reduced that I think I'll actually get to ENJOY Thanksgiving this year.
Now with any luck at all ... by the time I'm 33 ... I'll have more time to be with my friends and less time to take medications. The tide is turning folks. I am getting well. :)
Look forward to a post on Sunday about what all I found out on my Saturday morning LLMD appointment.
Friday, November 14, 2008
Carolina Frenzy 5
The ONLY Lyme problem came while we were waiting in line. I started not feeling well. My stomach was hurting, my heart was hurting ... my legs began to ache. HOWEVER ... I thought "this is mind over matter. I am going to ignore these problems and they will go away. Once we sat down, the best husband in the world went to the concession stands to get us pizza, popcorn and a couple of drinks. The drink settled my stomach and I continued to stare at Montross. :)
The noise at the Dean Dome is wonderful. Every score gets met with a huge cheer from the fans. AND they even cheered for some UNC Pembroke points too. Outstanding. We won with 102 points. :) Go HEELS. What a pleasure and a privelege to be in the same building as my favorite players (Eric Montross & Tyler Hansbrough). I can't wait to see what the team does this year. OUTSTANDING. :)
Thursday, November 13, 2008
Carolina Frenzy Part 4
If you can't tell what that is ... it's the UNC hospital. I have been there before as a patient. This time? NOT AS A PATIENT, but as hungry carnivores. :)
We got into line and waited with several nice families. It was so pleasant to be around very nice people. I got a phone call then.
It was from one of my good friends from high school. I knew he was there, but didn't want to get my hopes up that we could meet up. Next thing I know, he's there at the Dean Dome.I rush down the hill (yes I RAN .. I actually RAN .. and didn't hurt myself) to meet him. What a joyous day this had turned out to be. 1. I saw the Basketball Museum with loads of Eric Montross stuff. 2. I had spent the day admiring the scenery on campus. 3. I was at the DEAN DOME and 4. my very good friend that I had not seen since 1995 .. was there giving me the best hug ever. :)Nothing can be finer than to go to Carolina. :) GO HEELS.
Next up the Carolina Game. :)
Wednesday, November 12, 2008
Carolina Frenzy 3
These are balls from previous NCAA games. How awesome is that. I took lots of pictures especially from the 1993 game (which is the ball with the net on it). Why do I love the 1993 season? ONE reason and ONE reason alone. Eric Montross.
I knew that I had one goal in mind. That goal was to find every single thing from Eric Montross
I have never been so excited about UNC Basketball in my life. I felt the excitement in the room even from the Georgia Tech fans that were there for the football game. Though it was a little disheartening to hear a GT fan say "Did you see this? Some guy had to wear this cheesy mask last season." SOME GUY .. Tyler Hansbrough is not some guy .. He is a special guy. He is THE Man.
I have tons of pictures, but of course can't post them all. Know that most of them were Montross oriented. :) I had so much fun at the Museum. Then came "the Walk."
Tuesday, November 11, 2008
I'm back part 5
We took a rest at the hotel before heading out for a quick bite to eat. Now I figured since Cullowhee/Sylva has grown a bit that maybe just maybe the road to Franklin would be filled with new food places. Well ... color me surprise ... I was wrong.
After at least 30 minutes of driving (to and back again), we wound up back at Wendy's for dinner. We rushed back home to see 27 Dresses on TV and passed out shortly after.
Alarm woke us up at 6am so we could get up and ready to leave. It was after our bathroom time that Kellie told me that we made a huge oops. Even though we discussed it and knew it was happening ... her cell phone failed to set itself back one hour. So we actually woke up at 5am instead of 6am.
At least we wouldn't be late. We hemmed, hawed and watched an old movie that we poked fun of the cheesy acting for a while. We ate the continental breakfast and left Cullowhee for our homes. Talking made the 3 hours to her house go by very quickly. It seemed longer for the 2 hour drive to my house.
Monday, November 10, 2008
I'm back part 4
I took tons of photos: From the scoreboard
Prior to the start of the game, I told Kellie that a slaughter was about to happen. I meant that Western was going to lose big time. However the opposite was true. Western won big time. 27 to 7.
Western does this thing where they perform the half time show at half time and then again after the game. The half time show is performed to the home side and the post game show is done towards the visitor's side. I was able to record by video the entire post game show though I did it in two parts. The band rocked it out. Anyone that truly knows me knows that I absolutely detest Percussion. Well ... there is an exception to this "hatred." I absolutely *LOVE* Western's percussion line.
