I had my follow up 8 days ago. I've really had to digest this last appointment.
Each appointment, we get closer and closer to pulling out the big dogs. By big dogs, I mean IV antibiotics. I truly believe that if we weren't having such a tremendous heat wave (even though this week is cool -- and if my appt had been this week, our decision may have been different) he would have scheduled me to have a picc line inserted. However, we had a string of over 100 degree days and a line with that weather (and humidity) is just doomed from the beginning especially with my skin sensitivity to the line, dressings, cleaning solutions. It's much better to be a cooler temp.
So with that said: My next follow up is near the end of August. This weekend, I will start all 4 of my oral antibiotics along with a multitude of supplements. I will be on these through my follow up. Depending on how I do will depend on the next step, but based on previous attempts --- more than likely at the beginning of September, I will be having another picc line inserted to do my first ever IV antibiotics. It will also give me access for other types of IVs as well.
Truthfully, I should have started this process in January - but it takes my mind a while to catch up with what my body needs. I was fighting this process and now I'm fighting Lyme and Babesia and apparently Mycoplasma Pneumoniae. I'm tired of fighting, but I can't afford to give up. I've given myself a medication respite with approval from my LLMD so I could get some stuff out of my body, but I really need to restart them. I work a long day today (but Jennifer, you quit back in December you say --- well I went on substitute status and they really need me to work today --- ). I've known for a few weeks I'd work today which was one of the reason I went on med respite this week so that I wouldn't be having a herx reaction while working.
I've worked a couple of 6 hour shifts since quitting in December, but no more than that. So pray that I can make it for the 9 hours I'm there (plus the scant hour of traveling) without falling asleep and without mental confusion and without great pain.